NORD and Partners Publish Abstract Based on Web-Based Hemophilia A Educational Initiative for Patients, Caregivers and HCPs

National Organization for Rare Disorders (11/24/20) Kowalski, Katie

The National Organization for Rare Disorders (NORD), PlatformQ Health, the Hemophilia Federation of America and the National Hemophilia Foundation published an outcomes-evaluation abstract in conjunction with the 62nd American Society of Hematology Annual Meeting in the November supplemental issue of Blood. NORD and its partners developed Web-based education modules on hemophilia A, including an hour-long continuing medical education (CME) activity for health providers and an hour-long educational activity for patients, caregivers and family members. After taking the CME, 84% of clinicians said they expected the information they learned would benefit their clinical outcomes, while 80% expected to adjust practice behavior. Patients and caregivers who participated in the educational activity demonstrated improvements in confidence when communicating with health providers and in the ability to manage their own care or that of the person they care for. Combining CME and patient education can effect improvements in clinical practice behaviors, patient healthcare communication, skills and confidence and treatment knowledge of hemophilia A, the researchers said.

Read More

Recent Stories
A New Way to Educate Health Care Workers Abroad

Making It Stick: Use of Active Learning Strategies in Continuing Medical Education

Additional Flexibility Added to PHM Practice Pathway